gRoWE

The MND Association has developed a new programme of work to support the development of Real-World Evaluation, titled ‘generating Real-World Evidence (gRoWE)’.

As part of this programme of work, Ativar was commissioned to support the investigation of barriers and challenges in delivering care in Motor Neurone Disease (MND), using the NICE Guideline 42 (MND: assessment and management). This evaluation project has been developed in partnership with the University of East Anglia, and will include MND Care Centres and MND Care and Research Networks in England, Wales and Northern Ireland.

Thee first round of data collection will start in Spring 2026.