gRoWE

The MND Association has developed a new programme of work to support the development of Real-World Evaluation, titled  ‘generating Real-World Evidence (gRoWE)’.

As part of this programme of work, Ativar was commissioned to support the investigation of barriers and challenges in delivering care in Motor Neurone Disease (MND), using the NICE Guideline 42 (MND: assessment and management). This project has been developed in partnership with the University of East Anglia.

The project is in its setup phase, and the first round of data collection is planned for Spring 2026, pending governance approvals.